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Data Protection and Privacy Policy

EASL International Liver Foundation

 

We take the protection of your personal data seriously, meaning that we process your personal data with due care and in accordance with applicable data protection laws.

Consent

By accepting this Data Protection and Privacy Policy, you explicitly agree to the processing of your personal data for the purposes mentioned hereinafter and be legally bound by and explicitly consent to this Data Protection and Privacy Policy, as it may be amended from time to time.

Wherever our processing of your personal data is based on your consent, you have the right to withdraw your consent at any time by contacting us at the contact details below. Withdrawal of your consent does not affect the lawfulness of processing of your personal data based on consent before your withdrawal. Should you withdraw your consent to the processing of your personal data, please note that such withdrawal may prevent us from providing you with all or part of our services.

Scope

This Data Protection and Privacy Policy describes how we process your personal data that we collected, or you submitted, disclosed, or made available otherwise (directly or through an intermediary) to us and which rights and options you have in this respect. Additional provisions may supplement this Data Protection and Privacy Policy pursuant to the terms of any other contractual relationship we may have with you or your representative.

This Data Protection and Privacy Policy does not apply to privacy practices or services offered by other companies or individuals. In particular, this Data Protection and Privacy Policy does not cover the activities performed by other companies and organizations who advertise our services or any third party operating any website to which our website may contain a link.

This Data Protection and Privacy Policy is without prejudice of your right to lodge a complaint with a supervisory authority, if necessary.

Data controller, data controller’s representative in the EU

EASL International Live Foundation, Rue Daubin 7bis, 1203 Geneva, Switzerland is the data controller and can be contacted at 0041 (0)22 552 2497 or info@easl-ilf.org. Mrs Maguy Sicuro, Secretariat Director, is the data controller’s representative in the European Union and can be contacted at maguy@easl-ilf.org  0041 (0)22 552 2498.

Personal data and data subjects

Your personal data we may process consist of first name, last name, email address, telephone number, address, credit card details, banking details, contact details of companies’ representatives, passport and/or identity cards details, emergency contacts, insurance policy, tax information, CV, work and academic certificates, motivation letters and references’ contact details whose data subjects are users of our website, sponsors, donors, partners, suppliers, volunteers, executive officers, employees, job candidates, conferences’ participants and participants to awareness campaign.

We also collect personal data concerning health from patients. However, such personal data is anonymized in a way that re-identification of the patient is impossible.

Our website uses Google Analytics, a web analysis service provided by Google Inc. (‘Google’). Google Analytics uses ‘cookies’ (text files saved on your computer that make it possible to analyse your use of the website). The information generated by the cookie about your use of our website (including your IP address) is generally transferred to a Google server in the USA, where it is saved. Google will process this data to evaluate your use of our website, compile reports about our website’s activity on behalf of the website operators, and render other services connected with website and Internet use. Google will also forward this data, if applicable, to third parties, insofar as this is legally required or if these third parties use the supplied data on behalf of Google. Under no circumstances will Google use your IP address in connection with other data supplied by Google Inc. You can prevent the storage of cookies by choosing relevant settings for your browser software; if you do so, however, we should point out that you may not be able to access fully all the resources of our website. You can prevent Google from capturing or processing data generated by the cookie referring to your utilisation of the website (including your IP address) by downloading and installing a browser plugin via the following link: tools.google.com/dlpage/gaoptout.

Purposes

We process personal data for the following purposes:

  • to manage the Fellowships’ administration
  • to run, maintain, develop and enhance our business, our services and communication with you
  • to keep you informed about our activities and news (through our newsletter)
  • to respond to contact inquiries
  • to process donations
  • to perform and manage the contracts we signed with our suppliers or partners (e.g., donors, sponsors)
  • to manage our relationship with our employees
  • for any recruitment activities (screening and selection of candidates for employment / internship positions, including references checks (e.g., diploma, work certifications, contact references, former employers, etc) and the selection of volunteers who are keen to support our programs (e.g., by giving free lectures to conferences) or otherwise provide assistance in other tasks (e.g., administrative tasks)
  • to process and manage registrations to our conferences
  • to promote our activities (e.g., promotional campaign)
  • to conduct market or other surveys related to our projects and initiatives (i.e., needs assessment, monitoring & evaluation) or organization
  • to perform our contractual obligations towards you or to take pre-contractual steps at your request
  • to comply with any of your specific request
  • to comply with our legal and regulatory obligations, including court orders and exercise and/or defend our legal rights, reporting to and/or being audited by regulatory bodies, record keeping obligations
  • because processing is necessary for purposes of our legitimate interest or those of any third-party recipients that receive your personal data, provided that such interests are not overridden by your interests or fundamental rights and freedoms.

Personal data of patients are collected for scientific study and research purposes. As a reminder, such personal data are fully anonymized.

We will ask your consent before using your personal data for a purpose other than those set out above, subject to processing based on other legal grounds (e.g., our legitimate interests overriding your interests as data subjects, compliance with legal obligations, etc.).

Storage period

We do not store personal data for longer than is legally permitted and necessary for the related processing purposes. The storage period depends on the type of personal data and the purposes of the processing and therefore varies per use.

Typically, we store your personal data for as long as you use our services or for as long as we have another purpose to do so.

We erase personal data after the above-described storage period or when you request us to erase your personal data, to the extent we are not legally required or have a legitimate ground to continue storing your personal data (e.g., to assert or defend against legal claims until the end of the relevant retention period or until the claims in question have been settled).

Your rights

You are entitled to submit us a request in order to:

  • have access to your personal data and obtain information in relation to their processing (i.e., purposes of the processing, categories of personal data concerned, recipients to whom personal data have been or will be disclosed, etc.)
  • request the completion or correction of any personal data that is incomplete or inaccurate
  • restrict or object to the processing of your personal data
  • erase your personal data
  • receive, or request us to transmit to another designated person or entity, your personal data in a structured, commonly used, and machine-readable format; and
  • withdraw your consent to the processing of your personal data.

Your objection (or withdrawal of any previously given consent) could mean that we are unable to perform the actions necessary to achieve the purposes set out above or that you may not be able to make use of the services and products offered by us.

Please note that the above rights can be limited – for example, where we need your personal data to comply with the law or assert or defend against legal claims or have other compelling legitimate grounds for the processing that override your interests, rights, and freedoms. We may therefore be able to continue processing your personal data even after you have chosen to withdraw your consent to the extent required or otherwise permitted by law.

To exercise any of the abovementioned rights, please contact us at the contact details below.

If requests are manifestly unfounded or excessive, in particular because of their repetitive character, we reserve our right to either charge a reasonable fee taking into account the request or refuse to act on the request.

We may request the provision of additional information to confirm your identity if we have reasonable doubts concerning the identity of the person making the request.

Security

We implement and maintain reasonable and appropriate technical and organizational security measures in particular to protect your personal data against unauthorized or unlawful processing, accidental loss, destruction or damage and ensure the ongoing confidentiality, integrity, availability of personal data and resilience of the systems and services used for processing of personal data.

We regularly audit the application of our security measures and we ask third party experts to review our security controls against international standards. These audits help us to further improve our security level.

If, despite our security measures, a security breach would occur that is likely to result in a risk for your personal data, we will inform you, as well as relevant authorities when required by applicable data protection laws, about the security breach as soon as reasonably possible.

Staff

Your personal data will be made available only to the members of our staff who need to have access to such personal data for the purposes specified in this Data Protection and Privacy Policy. Such members of our staff have been instructed with respect to the contractual and legal data protection obligations and are bound to confidentiality.

Disclosure of your personal data to third parties

To accomplish the purposes mentioned in this Data Protection and Privacy Policy, your personal data may be disclosed to IT service providers, payment processors, banks, insurance companies, corporate travel agencies, employment agencies, auditors, consultants, legal counsels, event organizers and partnering organizations located in the European Economic Area (i.e. Switzerland, United Kingdom, Ireland and Italy).

We concluded written agreements with all our contractual partners to which we provide personal data imposing data protection obligations that are no less protective than our 5 commitments described in this Data Protection and Privacy Policy. They must in particular comply with our instructions and the applicable legal data protection requirements.

We may also disclose your personal data where this is necessary to meet any applicable lawor court order or to protect your or our interests in accordance with the law.

We might transfer your personal data outside of the European Economic Area in countriesthat are considered by the EU Commission and/or the Swiss Federal Data Protection and Information Commissioner as not ensuring an adequate level of protection for personal data only when you register for one of our conferences taking place outside of the European Economic Area. In such a case, we will require your explicit consent to the transfer of your personal data to such countries while drawing your attention to the fact that such countries are deemed not guaranteeing an adequate level of protection for personal data from an EU and Swiss data protections laws perspective.

Your obligations

You must ensure that personal data you provide us with are correct, accurate, current, truthful, and compliant with any applicable laws. In particular, since we will mainly use email communications with you, you are required to notify us of any modification of your email address.

Insofar as you provide us with personal data about third parties, you represent and warrant that you have the right to share such personal data and, where necessary, have obtained sufficient informed consent from the concerned data subjects and provided them with all necessary information, as may be required by applicable law or agreement, in order for us to process, store and disclose any such personal data without taking any further steps. In particular, you must ensure the concerned data subject is aware of the various matters detailed in this Data Protection and Privacy Policy, including without limitation our identity, how to contact us, our purposes of processing, our personal data disclosure practices and the data subjects’ rights.

Newsletter

If you have subscribed to our newsletter, we may occasionally send you an email to inform you about our activities, events, or conferences, solicit your feedback or just keep you up to date with news that might be of interest to you. We primarily use our website to communicate this type of information, so we expect to keep this type of email to a minimum.

You may opt-out from receiving our emails by sending an email to: info@easl-ilf.org, stating your wish to unsubscribe from our mailing list.

Changes

This Data Protection and Privacy Policy was established on 03.10.2018 and was revised on 23.12.2020. We may update this Data Protection and Privacy Policy at any time if required in order to reflect changes in our data processing practices, in personal data protection laws or otherwise. If the changes are significant (e.g., your personal data will be processed for new purposes), we will require your consent. We may not be able to provide you with all or part of our services as long as you have not accepted the amended terms.

Contact

For any question or request, please contact us at EASL International Live Foundation, Rue Daubin 7bis, 1203 Geneva, Switzerland, telephone 0041 (0)22 552 2497/ 8 or

info@easl-ilf.org.

 

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